Genetic Screening Presents Parents With an Impossible Choice

How do you decide whether to pass down the risk of disease to your kids?

Yasmin Tayag
Elemental

--

For people who carry BRCA, the so-called breast cancer gene, having children is a fraught choice. The same goes for any person carrying a gene linked to an increased risk of disease. There’s always a chance they might pass that gene on to their kids, along with the psychological burden that comes with carrying such a gene.

Now, genetic testing is increasingly allowing parents to choose whether to pass such genes down. While at first, it might seem like a no-brainer — why wouldn’t you want to prevent that fate for your children? — in reality, the decision is far more complicated. In a thought-provoking piece for Future Human, writer Jessica Furseth interviewed parents and would-be parents who went through the experience, discovering that time, money, and faith in science are just a few of the factors that shape such a difficult decision.

“In theory, genetic conditions with the potential to cause harm could be bred out of the human genome,” she writes. “That doesn’t mean that will happen anytime soon.”

Read more on Future Human:

--

--

Yasmin Tayag
Elemental

Editor, Medium Coronavirus Blog. Senior editor at Future Human by OneZero. Previously: science at Inverse, genetics at NYU.